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Showing posts with label disability. Show all posts
Showing posts with label disability. Show all posts

Tuesday, May 15, 2007

When overcoming disability becomes liability

This article shares the story of an Olympic hopeful, a man who has been running for years and who hopes to travel to China in 2008 with the South African Olympic team. There's one significant difference between Oscar Pistorius and your typical sprinter, however. He's got two prosthetic legs.

Despite the incredible feat of overcoming the loss of both his legs from a birth defect, the international track and field organization (IAAF) are now considering banning him from competition, because they postulate that his prosthetic limbs may give him a competitive advantage. However, the facts suggest otherwise:

According to Gailey [an associate professor of physical therapy at the University of Miami Medical School], a prosthetic leg returns only about 80 percent of the energy absorbed in each stride, while a natural leg returns up to 240 percent, providing much more spring...

...There are many disadvantages to sprinting on carbon-fiber legs, Pistorius and his coach said. After a cumbersome start, he needs about 30 meters to gain his rhythm. His knees do not flex as readily, limiting his power output. His grip can be unsure in the rain. And when he runs into a headwind or grows fatigued, he must fight rotational forces that turn his prosthetic devices sideways, said Ampie Louw, who coaches Pistorius.

In other words, Pistorius is actually at a disadvantage. The arguments get steadily more inane:
Foremost among the I.A.A.F.’s concerns is that Pistorius’s prosthetic limbs may make him taller than he would have been on natural legs and may unfairly lengthen his stride, allowing him to lower his best times by several seconds in the past three years, while most elite sprinters improve by hundredths of a second.
His legs aren't getting any longer, dummies. And Pistorius is hardly a giant, standing 6 feet, 1.25 inches with his prosthetics. Despite the science of the prosthetic and the inanity of the IAAF complaints, the typical slippery slope arguments follow:
A sobering question was posed recently on the Web site of the Connecticut-based Institute for Ethics and Emerging Technologies. “Given the arms race nature of competition,” will technological advantages cause “athletes to do something as seemingly radical as having their healthy natural limbs replaced by artificial ones?” wrote George Dvorsky, a member of the institute’s board of directors. “Is it self-mutilation when you’re getting a better limb?”
How about this rule. You can only compete in prosthetics that are used to replace bum legs (or no legs). And you can only sit on the IAAF if you've had your brain removed. So far we're batting .500.

Wednesday, May 09, 2007

Preserving disabilities for the sake of diversity?

Should more parents be able to avoid having a child with disabilities? Such is the dilemma raised by new testing technology and recommendations from the American College of Obstetricians and Gynecologists. The doctors are recommending that all pregnant women have their fetuses tested for Down Syndrome, a disability affecting 350,000 Americans.

Parents of children with Down Syndrome say that we shouldn't be too hasty in choosing to avoid having any children with Down's. Raising issues from funding for research on the disability to school access to presence of other similar children, the parents are organizing to help parents whose fetus has a Down Syndrome diagnosis to consider the options.

At the same time, Down syndrome is not a cakewalk for parents.
The 5,500 children born with Down syndrome each year in the United States suffer from mild to moderate mental retardation, are at high risk for congenital heart defects and a variety of other medical problems, and have an average life expectancy of 49. As adults, some hold jobs, but many have difficulty living independently.
On the one hand there's the ethical question of parent's choosing features of their children (e.g. the presence of disabilities, perhaps the gender, etc...). On the other hand, having a child with this disability means a lot of extra care and work. And what about the child? No matter the quality of the parenting, the child will still have to face the social stigma of their condition, the being "different."

I was left with two thoughts:
1) As the article notes, some of these parents are rather selfishly desiring their child to grow up in a supportive environment. More kids with Down syndrome means more support. That's crap.
2) In a recent conversation with the vet about our outdoor cat, he noted that Leo was likely to have a shorter lifespan than an indoor cat (I'm sure he's expended several of his 9 lives already). However, he also said that it may be a much happier life for him (and any cat) than being confined to a single house for a lifetime. Are the the lives of my cat and my children simply subject to my personal preferences?